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About Enroll-HD
About Enroll-HD
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Welcome to the Enroll-HD Portal, your access point to contribute to the largest database of clinical data for Huntington’s disease (HD). The overarching objective of Enroll-HD is to accelerate the development of therapeutics for HD by:
  • compiling uniform clinical data and biological samples to better understand the natural history of HD;
  • building a more comprehensive database – including biological samples – that will be accessible to any HD investigator worldwide;
  • facilitating clinical sub-studies and the development of validated HD assessment tools;
  • fostering good clinical care and improving health outcomes for both patients and families;
  • expediting recruitment into future global clinical trials of candidate therapeutics.
Enroll-HD Newsletter and Monthly News Bulletin:
The monthly News Bulletin and quarterly newsletter for research participants and site staff can be found on the Enroll-HD website.
Enroll-HD Study Status:
Participating sites: 182
Participating countries: 19
Total participants: 21 585
May 25, 2019.
 
Enroll-HD News:
HDClarity 2.0 (Feb 2018)
  • Amended CAG cut-off values implemented
  • Amended TFC cut-off values implemented
  • Multiple enrolments possible for longitudinal collection
Enroll-HD 1.10 (Feb 2019)
    • Change in sample collection and biokit orderig
    • Change of participant overview and creation of new visits
    • Change of hdid creation and verification page
    • Change of date fields
    • Save & Sign button and submission of visits for review
    • Continue data entry for general data
    • Many further enhancements
    HDClarity 3.0 (May 2019)
    • Study protocol 3.0 implemented (annual sampling visits)
    • Partial sampling visits possible
    • Further enhancements
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